Friday, August 24, 2012

Scan results are back ??????

I met with Dr K and he had my scan results back and also latest blood test results. My cancer cell count has come down again to approx 350, which is about half of the levels prior to the treatment. Dr K said it must as a result of the treatment as I am still off Chemo. Originally the specialist said best result would see a reduction by half so all going according to plan. The size of the tumors are still about the same but has been put down to the scan showing the dead cells as well, so will take that as a positive. But as usual two steps forward and one back. The scan also shows two active nodules in my right lung. These were identified on a previous scan but at that time they were too small to know what they were. Dr K is 90% sure it is cancerous so not good news. Nothing we can do at the moment and hopefully when I start Chemo again it may keep it under control or even kill it off if I am lucky. So not good news. I am still having trouble with the ulcers and am going back in for another scope to see what is going on. The fear is the ulcers have turned malignant (cancerous)which would mean the only way the get rid of would be to operate. Dr K has concerns about an operation due to my current state of health, but will cross that bridge when we get to it. To be honest I am over the continual pain and feeling like the walking dead by mid afternoon everyday. It is just not fair on my Family, Meghan and Sam. By the time I get home from work everyday I am not in the best frame of mind and have no energy to really enjoy their company or visa versa. I try my best but I just wish I felt normal. I have another appointment with Dr K on Monday so will discuss in detail, but not really interested in increasing the pain killers as I am on a very high dose now. I am still overwhelmed by the support I receive from everyone. It is the one thing that keeps me getting up each morning and getting through each day, so thank you to All for your phone calls and emails, it means so much to me.

Friday, August 10, 2012

Currently in Limbo

It's been awhile since my last blog, and mainly because I am in limbo at present. I went into hospital for day surgery and they found ulcers in my stomach caused through the SIRT treatment. There is no quick way to get rid of these so now on medication to reduce the pain and wait for the ulcers to heal. Dr K will not let me start back on chemo until they are all cleared up. I have had CT scans and they will compare the results from these scans against the last scans I had prior to the treatment. Hopefully we will see some reduction in the tumor sizes. I should have the results in the next week. So wish me good luck. It will be disappointing to go through so much pain and not see some improvement. I have not been so well within myself lately. Considering I have been off chemo since April now, I thought I would be starting to feel normal again, but not the case. I get to about 2pm each day and I just hit a brick wall. I just don't have the energy I used to have. Also my concentration levels have reduced dramatically which frustrates me no end. Given I had very radical treatment 2 months ago may be it is understandable. I think I just expect to much from myself, and need to start slowing down with my workload. Once I go back onto regular chemo treatment I have a feeling the fatigue will only get worse, so yes I am now starting to think about how I am going to handle my job or even if I can continue. Meghan is very supportive of me whatever decision I make, but for those who know me, it would be a huge step for me to stop working. I need to ensure the company is not suffering through me not being able to cope day to day, so the decision needs to be made while I am still on top of my game. Big call but not going to rush into it. So looking forward to getting my results although a little nervous and getting rid of these ulcers. Overall life is great and love living in Darwin, and made better by the weather at the moment as it is dry season and 30 degrees everyday. I will update everyone on my results as soon as I have them. Bye for now.